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sonia Gluten Free's Groups
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Gluten Free Foodies of N…
7 members
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Red Celiaca Solidaria-
1 member
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Asociacion de celiacos S…
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Gluten Free Arabia
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Gluten Free Chicago
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sonia Gluten Free's Discussions
Patients with a less severe form of celiac disease may be at a higher risk
Started Sep. 20, 2009
Firm cancels health insurance coverage for girl, 17, after celiac disease diagnosis
Started Sep. 17, 2009
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sonia Gluten Free's Page
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Profile Information
- About Me
- My name is Sonia and I have a granddaughter of celiac seven years, was diagnosed with the disease a year and a half.
The whole family has a genetic positive, but only Iona, has developed the disease.
I think they need celiac laws?
Our children are safe at home while they are small, but they are teenagers?
I am very concerned about the lack of proper labeling, lack of medical protocol, so I think our governments need to include in their priorities celiac disease.
Thank you and forgive the long message
a hug with affection
sonia gluten free
- Favorite G-Free Websites/Blogs
- http://minietasingluten.blogspot.com
Jane Aston
Thanks friend.
Toy of emotion is crying.
Do not know what it means to me that the American celiacs unite and demand for such disclosure as required.
thank you very much on behalf of my granddaughter and six years on my own.
The American celiacs and support are critical to achieving success at international level.
God cares for-AMERICA
Thank you very much to heart
sonia Gluten Free's Photos
Red celiaca Solidaria
Added September 13, 2009 at 9:41pm 1 Comment
Memoria
Added September 6, 2009 at 5:17pm
Celiacos Sin Fronteras
Added September 5, 2009 at 5:46pm 1 Comment
Es posible que los celiacos norteamericanos se unan a este deseo.
Added August 20, 2009 at 10:59pm
Celiacos sin fronteras-Celiac without borders
Added August 20, 2009 at 1:46pm 1 Comment
el mundo
Added August 19, 2009 at 10:20pm 2 Comments
sonia Gluten Free's Videos
Sonia Gluten Free's Blog
Madrid will make those affected??
Esperanza Aguirre-Gallardo
Wednesday November 25, 2009
Ms Esperanza Aguirre-Gallardo Sr No
Posted on November 25, 2009 at 10:36pm — 1 Comment
Family First: Celiac Disease
posted 10/01/09 12:17 pm
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Atlanta, GA - A study by the… Continue
Posted on October 1, 2009 at 2:42pm — 1 Comment
Now, you can do to a college celiac lunchtime???
Now, you can do to a college celiac lunchtime???
You can go back to his childhood carrying a gluten-free lunch box menu, you can also limit your lunch pail to salads, grilled steak that if you do not forget to talk beforehand with the chefs in the cafeteria, almost certainly unaware that is cross-contamin… Continue
Posted on September 29, 2009 at 2:25pm —
Resource Guide for Celiac Disease
Resource Guide for Celiac Disease
by Rick Alan
Main Page |
Risk Factors |
Symptoms |
Diagnosis |
Treatment |
Screening |
Reducing Your Risk |
Talking to Your Doctor |
Living With Celiac Disease |
Resource Guide
En Español (Spanish Version)
American Gastroenterological Association (AGA)
Address:
National… Continue
Posted on September 29, 2009 at 2:19pm —
Celiac Disease unit specializing in adults and children-Madrid-Spain
Celiac Disease unit specializing in adults and children-Madrid-Spain
Dear friends, this project fills me with hope and illusion, we finally have in Madrid, a private multidisciplinary unit
NISA hospital Aravaca for children and adults "Celiac" --
All my support, respect and gratit… Continue
Posted on September 29, 2009 at 12:39pm —
Comment Wall (16 comments)
- At 8:42am on November 9, 2009,
traci said…
- thank you =)
- At 11:40am on October 21, 2009, Jayne Aston gave sonia Gluten Free a gift…
- At 11:39am on September 30, 2009,
Joann Mitchell said… - Sonia ~
Thank you! It was a common phrase used in my home by my mami. I have Celiaca nd so do my children ranging from 12 years old to 25 years old. And I have a grandson too! I have been doing this for about 6 years and it does get a little easier. The US is a horrible place to try and get a gluten-free meal, but it too is getting better. Thanks to labeling laws and stricter guidelines things are progressing. But I still make 99% of all of our food from scratch. Lots of work, but in the end well worth it. I too am on the crusade to promote awareness of this disease. Keep in touch!
Amor y abrasos ~ Joann (Buen Provecho)
- At 3:56pm on September 14, 2009,
Nadine said… - Hello Sonia,
Well, unfortunately nobody replied ... and I do not think they will reply anytime neither sooner nor later!
Have a nice day :)
- At 9:58am on September 14, 2009,
Jason D said… - Gracias Sonia, espero a vistar mis primos en la este de Espana (Barcelona, Alicante, San Javier, y Zurgena) este otono. Hasta pronto. Jason
- At 5:21am on September 7, 2009,
gewel said… - Hola guapam com iba a fallarte, la verdad es que con los dos no tengo tiempo para nada, pero para estas osas se saca de donde sea y másvnindo de ti. Todavía no le he hecho la genetica. La lleva a Jamil el digestivo quele lleva todo a alex y me dijo que era mejor esperar para o pincharla, que si a los 15 meses no manifestaba nada que la llevara en Febrero, a los dos porque a Alex ya le toca la revisión, me dijo que a lo mejor le hacía una segunda biposia, como ya hace los 6 años en nnoviembrque lo evaluará y a Ainara le hará los analisis. Que taltus nietos los he visto en le facebook y está ya muy mayores. y tu que tal todo?
Muchos besos Sonia
- At 2:21am on September 7, 2009,
Nadine said…
- Hello Sonia :)
I just remembered , I did contact the Ministry of Health previously along with the Royal Health Awareness Society and got no response from either. I did contact them again now by e-mail and will see what happens next.
Hopefully someone will read and reply!
Take Care
Adios
- At 1:27pm on September 6, 2009,
Nadine said…
- Hello :)
Well, I have tried to contact some doctors to form an association and one of them was actually interested and worked on it before but faced some obstacles from the government. I will continue trying ... hoping that someone will listen one day! :) I am in contact with supermarkets and some special diet shops. Things are getting better thank God.
But some serious + medical effort must be taken very soon to raise awareness. I will try my best in all what I can do :)
Have a nice day
Keep up the good work!
- At 12:39pm on September 6, 2009,
Laura Iria said… - Hola! Pues la verdad es que soy una celíaca recién diagnosticada y me asociaré la semana que viene. El tema de restaurantes regular, hay muy pocos en Vigo, creo que son 4, y muy caros. Todavía me estoy acostumbrando a todo el giro que ha dado mi vida pero trato de afrontarlo con optimismo ya que no se puede luchar contra algo que es inevitable. Gracias por agregarme como amiga, y cuenta conmigo para ayudar en lo que sea necesario. Es una lucha que nos concierne a todos, un saludo!
- At 11:06pm on September 5, 2009,
batool said… - Hi Sonia
MY GASTROINTERIOLOGIST AND ONE PATIENT TRIED TO ESTABLISH ACOMMUNITY FOR CELIACS .BUT NOBODY CO-OPERATED AND .
2- FEW YEARS AGO, YOU CAN GET FREE SUPPLEMENTS LIKE CRACKERS,PASTA,FLOUR ,NOODLES AND WAFERS FROM THE GOVERMENTAL HOSPITALS BUT KNOW WE HAVE TO BUY EVERY THING BY OUR SELVES AND THE FOOD IS SOO EXPENSIVE.
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