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So Angry with my Dr. He Smirked at my mention of Celiac
Hi Everyone
I have been in bits these past few weeks. My story so far:
History of lifetime of problems, especially infertility and many misarriages which breaks my heart. Tummy troubles of course etc etc
This June things got much worse. First Dr said IBS and go away (despite bleeding and mucus) and so I started researching and found celiac disease.
Went GF for 3 weeks, felt increadible, then decided to eat gluten again to get a diagnosis.
Took a BioCard home test which was faintly positive. Went to see GP for official diagnosis. Told him my symptoms again and he was horrified that cancer hasn't been ruled out.
Referred me to GI right away (tho the wait was 12 weeks) and had me do a blood test for celiac.
The blood results back today were described as "negative, you don't have celiac disease - no further action required" Don't you love the NHS!!
My blood results are these: Having trouble finding out of thats what they should be or not:
IGA : 0.5
IGG: 0.6
So, today is the day I saw the GI doc. He doesn't believe that any bowel issues will be solved by diet change but I can go gluten free if it makes me feel better (mind over matter he said). He doubts its cancer as I'm under 40! Not got much pain. He is going to do a colonoscopy to check for inflammatory bowel disease ie crohns or colitis. Then put me on steriods accordingly.
Frankly, I'm horrified by the whole ordeal. He won't do an endo. Doesn't see the point given my bloodwork.
I feel sick, have indigestions, burbles, bloating, sleepless yet sleepy, hair loss, weight gain, tearful, irritable, masive amounts of mucus and bleeding and the main thing is no energy.
My mum has osteo and my brother died of cancer of the testicles. I wonder if we are all connected.
Talking to DH i have decided that in UK the drs are so closed minds to anything that you can help yourself with. They want to put you on pills because they get paid that way by the pharmecutical companies. If I can cure myself by going GF (I think i need to be dairy free too) then they won't profit from me. Thus, I doubt I will get a diagnosis. I can't keep on eating gluten like this. Never have I felt in optimum health and I think it may be the answer for me. How dedicated can I be without a diagnosis? Think we will find it hard. My DS also suffers hugely from the big D.......
I need some recognition from the health people butI'm not going to get it.
Help me you guys? I am blood type O and I know we handle grains badly anyway....even if im just intolerant, I need to do this to help myself.
I really am glad you are all here. This Dr so made me mad!!!
Love
Lou x
I have been in bits these past few weeks. My story so far:
History of lifetime of problems, especially infertility and many misarriages which breaks my heart. Tummy troubles of course etc etc
This June things got much worse. First Dr said IBS and go away (despite bleeding and mucus) and so I started researching and found celiac disease.
Went GF for 3 weeks, felt increadible, then decided to eat gluten again to get a diagnosis.
Took a BioCard home test which was faintly positive. Went to see GP for official diagnosis. Told him my symptoms again and he was horrified that cancer hasn't been ruled out.
Referred me to GI right away (tho the wait was 12 weeks) and had me do a blood test for celiac.
The blood results back today were described as "negative, you don't have celiac disease - no further action required" Don't you love the NHS!!
My blood results are these: Having trouble finding out of thats what they should be or not:
IGA : 0.5
IGG: 0.6
So, today is the day I saw the GI doc. He doesn't believe that any bowel issues will be solved by diet change but I can go gluten free if it makes me feel better (mind over matter he said). He doubts its cancer as I'm under 40! Not got much pain. He is going to do a colonoscopy to check for inflammatory bowel disease ie crohns or colitis. Then put me on steriods accordingly.
Frankly, I'm horrified by the whole ordeal. He won't do an endo. Doesn't see the point given my bloodwork.
I feel sick, have indigestions, burbles, bloating, sleepless yet sleepy, hair loss, weight gain, tearful, irritable, masive amounts of mucus and bleeding and the main thing is no energy.
My mum has osteo and my brother died of cancer of the testicles. I wonder if we are all connected.
Talking to DH i have decided that in UK the drs are so closed minds to anything that you can help yourself with. They want to put you on pills because they get paid that way by the pharmecutical companies. If I can cure myself by going GF (I think i need to be dairy free too) then they won't profit from me. Thus, I doubt I will get a diagnosis. I can't keep on eating gluten like this. Never have I felt in optimum health and I think it may be the answer for me. How dedicated can I be without a diagnosis? Think we will find it hard. My DS also suffers hugely from the big D.......
I need some recognition from the health people butI'm not going to get it.
Help me you guys? I am blood type O and I know we handle grains badly anyway....even if im just intolerant, I need to do this to help myself.
I really am glad you are all here. This Dr so made me mad!!!
Love
Lou x
Replies to This Discussion
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Permalink Reply by Jayne Aston on -
Hey Louise
How are you feeling these days?
I just wanted to share with you, my latest views on doctors.
Doctors do alot of guessing and trial & error and we are the guinea pigs.
They don't really know anything except that their books tell them that if you have symptoms A, B and C then you must have Disease D or Syndrome S etc.
Who could possibly know how our bodies feel better than us?
I think we can make a more educated guess.
OK I am all finished venting...........for now :)
-
Permalink Reply by Jenifer Bremehr on -
Jayne, you must have had a recent appt!
Jayne Aston said:Hey Louise
How are you feeling these days?
I just wanted to share with you, my latest views on doctors.
Doctors do alot of guessing and trial & error and we are the guinea pigs.
They don't really know anything except that their books tell them that if you have symptoms A, B and C then you must have Disease D or Syndrome S etc.
Who could possibly know how our bodies feel better than us?
I think we can make a more educated guess.
OK I am all finished venting...........for now :)
-
Permalink Reply by Jayne Aston on
-
It shows huh?
Jenifer Bremehr said:Jayne, you must have had a recent appt!
Jayne Aston said:Hey Louise
How are you feeling these days?
I just wanted to share with you, my latest views on doctors.
Doctors do alot of guessing and trial & error and we are the guinea pigs.
They don't really know anything except that their books tell them that if you have symptoms A, B and C then you must have Disease D or Syndrome S etc.
Who could possibly know how our bodies feel better than us?
I think we can make a more educated guess.
OK I am all finished venting...........for now :)
-
Permalink Reply by Jenifer Bremehr on
-
Nawwww! Not at all!
:)
Jen
Jayne Aston said:It shows huh?
Jenifer Bremehr said:Jayne, you must have had a recent appt!
Jayne Aston said:Hey Louise
How are you feeling these days?
I just wanted to share with you, my latest views on doctors.
Doctors do alot of guessing and trial & error and we are the guinea pigs.
They don't really know anything except that their books tell them that if you have symptoms A, B and C then you must have Disease D or Syndrome S etc.
Who could possibly know how our bodies feel better than us?
I think we can make a more educated guess.
OK I am all finished venting...........for now :)
-
Permalink Reply by Nancy Morgan on -
Hahaha...someone went to he doctors, for sure. I come back to 24 emails from gluten free faces just since this morning!!! For once it wasn't me. I've been cooking up a storm from not eating well for weeks from being too fatigued. I won't even say how much I ate today :-)
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Permalink Reply by Dr. Peter Osborne on -
Lou,
If you need full confirmation for a diagnosis, do a genetic test (link below):
http://www.glutenfreesociety.org/genetic-testing-for-gluten-sensiti...
The other tests are a waste of time. Doctors are light years behind the curve when it comes to gluten sensitivity diagnosis. I hear your same story every day in my office. As a matter of fact, a patient just left 10 minutes ago with the same experience you had.
I would also encourage you to watch the following video. It explains the differences between celiac and gluten sensitivity. It should help you on your way to a healthier life.
http://www.glutenfreesociety.org/video-tutorial/gluten-sensitivity-...
All the best,
Dr. O
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